Articles

What are the unique challenges of conducting clinical trials among sickle cell patients?

Identifying and establishing trial sites.
Collecting and monitoring patient data in sickle cell disease registries, across disparate geographies.
Enhancing patient support and education during trials.
Addressing ethical regulations and patient safety when conducting clinical research among pregnant persons with Sickle Cell Disease.

Rationale for Clinical Trial to address racial disparities in maternal mortality

Racial Disparities In Maternal Mortality Rates

References

Early ML, Eke AC, Gemmill A, Lanzkron S, Pecker LH. Severe Maternal Morbidity and Mortality in Sickle Cell Disease in the National Inpatient Sample, 2012-2018. JAMA Netw Open. 2023 Feb 1;6(2):e2254552. doi: 10.1001/jamanetworkopen.2022.54552. PMID: 36729452; PMCID: PMC9896307.

Black Girl Ventures Pitch Competition

...Bringing Reproductive Justice To The Forefront Of